Penny Pruim
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Penny Pruim
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Cancerland
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Hospice
(2)
PostHope
(138)
Zweite Weihnachten (Second Christmas)
It’s been a while (over four months) since I’ve posted anything here. Not coincidentally, the last post was written shortly before the start of the Fall semester. But the…
Dec 29, 2025
R Pruim
Unfinished
Cancerland
Unless I stumble across another stash of writings – which is certainly possible – we’ll have to settle for the titles of volumes 2 and 3 of
Cancerland
and our imagination…
Aug 16, 2025
R Pruim
In all things give thanks
Cancerland
This poem was in the same Word document as the previous two posts. It appears to have been written in September 2018. Chemotherapy had resumed in August. Periodic checks of…
Aug 12, 2025
P Pruim
Living on Borrowed Time
Cancerland
This is the second essay I’ve found that appears to have been intended for inclusion in Volume 2: God from Stage IV. The Big Surgery was in November 2016. This essay was…
Jul 29, 2025
God from Stage IV
Cancerland
In early summer 2018 it appears that Penny began a project that was intended to be a follow-up to the Cancerland essays. I’ve found a table of contents for two additional…
Jul 24, 2025
Volumes 2 and 3
Cancerland
It has been a bit since I’ve posted. A few people have asked me how it felt to finish posting Penny’s
Cancerland
essays. A couple have asked if I planned to post anything…
Jul 19, 2025
P Pruim
Cancerland 12: The Trees and the Forest
Cancerland
This is the twelfth and last of Penny’s Cancerland essays. It doesn’t appear to have been completely finished, and I’m not sure exactly when it was written. I’m guessing it…
Apr 13, 2025
P Pruim
Cancerland 11: Loss, Anger, Lament
Cancerland
This is the eleventh of Penny’s Cancerland essays. She was diagnosed with colon cancer in February, 2016. Emergency surgery in February was followed by recovery, then 12…
Mar 29, 2025
Cancerland 10: Information Management (the TMI Chapter)
Cancerland
This is the tenth of Penny’s Cancerland essays. She was diagnosed with colon cancer in February, 2016. She had emergency surgery in February, followed by recovery, then 12…
Mar 23, 2025
P Pruim
Cancerland 9: Helpful Helping
Cancerland
This is the ninth of Penny’s Cancerland essays. She was diagnosed with colon cancer in February, 2016. She had emergency surgery in February, followed by recovery, then 12…
Mar 9, 2025
P Pruim
Cancerland 8: Do-Be’s and Be-Be’s
Cancerland
This is the eighth of Penny’s Cancerland essays. She was diagnosed with colon cancer in February, 2016. Emergency surgery in February, followed by recovery, then 12 biweekly…
Mar 4, 2025
P Pruim
Cancerland 7: Life A.D. (After Diagnosis)
Cancerland
This is the seventh of Penny’s Cancerland essays. She was diagnosed with colon cancer in February, 2016. Following emergency surgery in February and 12 biweekly chemotherapy…
Feb 23, 2025
P Pruim
Cancerland 6: The Face of Death
Cancerland
This is the sixth of Penny’s Cancerland essays. She was diagnosed with colon cancer in February, 2016. Following emergency surgery in February and 12 biweekly chemotherapy…
Feb 16, 2025
P Pruim
Cancerland 5: Kemosabe and Chemotherapy
Cancerland
This is the fifth of Penny’s Cancerland essays. She was diagnosed with colon cancer in February, 2016. In this essay she reflects on her first round of chemotherapy, which…
Feb 12, 2025
P Pruim
Cancerland 4: Against the Odds
Cancerland
This is the fourth of Penny’s Cancerland essays. She was diagnosed with colon cancer in February, 2016, and had chemotherapy that summer and into the fall. This must have…
Feb 5, 2025
P Pruim
Cancerland 3: What’s YOUR pain number?
Cancerland
This is the third of Penny’s Cancerland essays, originally written in 2016 and 2017, after her cancer diagnosis in February, 2016.
Jan 27, 2025
Cancerland 2: Curses at the Port of Entry
Cancerland
Penny spent January 2016 in Cambodia and Thailand with a group of Calvin students and two faculty colleagues. Looking back, we can see signs that she had cancer already…
Jan 22, 2025
P Pruim
Cancerland 1: Death, BC (Before Cancer)
Cancerland
I’m guessing Penny wrote this in November 2016. Her cancer diagnosis was in February, 2016, followed by recovery from emergency surgery, a summer of chemotherapy, and “the…
Jan 8, 2025
Anniversaries and Cancerland
Cancerland
Today would have been our 35th wedding anniversary.
Jan 6, 2025
R Pruim
In lieu of flowers, part 2
It has been a while since I’ve posted anything here. I’ve considered posting from time to time, but for various reasons, none of those posts ever happened.
Jan 1, 2025
R Pruim
In case you missed it
Memorial Service recording
Aug 25, 2024
R Pruim
Additional memorial service details
We will greet friends and family on Friday, August 23, from 4-7 pm at Zaagman Memorial Chapel (2800 Burton St. SE).
Aug 20, 2024
R Pruim
In lieu of flowers…
Penny has always enjoyed flowers. Flowers were one of her frequent “doodles”.
Aug 16, 2024
R Pruim
Endless song
Penny slipped away in her sleep in the early hours of the morning today.
Aug 16, 2024
R Pruim
PostHope recovery
Back in June the PostHope site went down. Since then the administrators of that site have been trying to restore a temporary version of the site so authors could download…
Aug 10, 2024
R Pruim
Big crunchy granola
This evening Penny was preparing to get out of bed and said “I want to walk to the big crunchy granola.” It took a bit to work out what she really wanted: to sit on the big…
Aug 10, 2024
R Pruim
Open door policy
Yesterday I asked Penny if she had anything particular she wanted to do or have happen in the next few days. Her response was that she would like to have the door and window…
Aug 9, 2024
R Pruim
Peaceful day
Today was a peaceful, sleepy day.
Aug 5, 2024
R Pruim
Falls and Fever
Penny continues to get weaker.
Aug 1, 2024
R Pruim
Lake Wobegon Days
It has been a (mostly) quiet week at our house.
Jul 28, 2024
R Pruim
Slow motion
Today (Tuesday) marks three weeks since Penny came home from the hospital and entered hospice care. I can’t decide if it feels longer or shorter than that.
Jul 16, 2024
R. Pruim
Winding down
The last couple days have been relatively calm.
Jul 8, 2024
R Pruim
Update
We are now nine days into home hospice care and there isn’t a lot of big news to report. But it seems like it is time to post an update of some sort. So here goes.
Jul 4, 2024
R Pruim
Giving CaringBridge a try
Yesterday I spun up this blog because I knew how to do it quickly and easily and didn’t have time to investigate alternatives to PostHope.
Jun 30, 2024
R. Pruim
Welcome to the new blog
PostHope
Blog
After a couple of weeks of funny behavior at PostHope, today the site says:
Jun 29, 2024
R Pruim
Hospice: First few days
Hospice
Our biggest challenge coming home was “wound management” around the GJ tube site. So we spent a good deal of time discussing that with the hospice nurse, doing inventory of…
Jun 29, 2024
R Pruim
Hospice
Hospice
We came home from Butterworth this afternoon as planned and a hospice intake nurse and social worker met us in our home shortly after we had arrived. Some new equipement –…
Jun 25, 2024
R Pruim
35 years ago today…
…Penny and I had the worst sunburn of our lives.
Jun 24, 2024
R Pruim
35 years ago today…
…Penny and I had the worst sunburn of our lives.
Jun 24, 2024
R Pruim
The news isn't good
PostHope
A little bit ago we had a conversation with one of the doctors -- the one who had been most optimistic yesterday. He is no longer as optimistic. We have bad news on pretty…
Jun 23, 2024
R Pruim
You don't have mail
PostHope
When I make posts to PostHope, email notifications are supposed to be sent to all followers who have notifications turned on. It seems that these email notifications have…
Jun 22, 2024
R Pruim
Familiar faces, very rare patient
PostHope
Penny remains in the hospital. Yesterday was consultation day with visits from palliative, wound, nutrition, oncology, internal medicine, interventional radiology, even a…
Jun 20, 2024
R Pruim
Back in the ER
PostHope
The last couple days Penny has been pretty painful around the tube site. The skin around the tube was becoming raised and tender, and any movement was painful. The…
Jun 18, 2024
R Pruim
Three-hour tour
PostHope
When we went to the ER on Monday we were hoping to spend perhaps 3 hours getting an infusion. But as with Gilligan’s Island, things didn’t go quite to plan.
Jun 16, 2024
R Pruim
Back in the ER
PostHope
Each Monday recently our visiting nurse Claire has come to check on things. Today she also drew blood.
Jun 11, 2024
R Pruim
Much better day today
PostHope
Today has been a much better day. Penny hasn’t taken any pain or nausea meds since last night, and the knitting has been out this afternoon.
Jun 2, 2024
R Pruim
48 hours
PostHope
Our care manager called the various offices and did some shuttle diplomacy for us. The two main outcomes were to discontinue tube feeds for 48 hours (starting yesterday)…
Jun 2, 2024
R Pruim
You’ve got mail
PostHope
I dream sometimes of a world where health care and health insurance work differently. One of those dream state differences has to do with billing. In that world, I would get…
May 30, 2024
R Pruim
Home has a better view
PostHope
Penny came home late yesterday afternoon. In the evening, her leg showed some increased swelling, and we were given “a low threshold for going to the ER.” But with some…
May 20, 2024
R Pruim
Room with a view
PostHope
The thrombectomy was done at 8:30 this morning and seems to have gone well. All the clotted material was removed and the stent is clear again.
May 18, 2024
R Pruim
No soup for you
PostHope
Today has been a waiting day. We weren’t able to get the thrombectomy scheduled today, but we are on the schedule for tomorrow. The time has moved from 2pm, to 11 am, to…
May 18, 2024
R Pruim
Streak broken at 41
PostHope
If I’ve counted correctly, we have slept at home for 41 consecutive nights. That streak looks like it will be broken today.
May 17, 2024
R Pruim
Tulips and cotton candy
PostHope
The last two weeks or so have mostly (with a couple notable exceptions) fallen into a somewhat predictable pattern: Mornings good, afternoons meh, evenings bad.
May 10, 2024
R Pruim
Post-eclipse update
PostHope
I haven't posted since Eclipse Day, so I figure it is time for an update. Here are some of the highlights.
Apr 24, 2024
R Pruim
Eclipse
PostHope
I hope many of you enjoyed the great eclipse yesterday.
Apr 9, 2024
R Pruim
Home again
PostHope
We got home about 7pm tonight.
Apr 6, 2024
R Pruim
Discharge delayed
PostHope
This morning began early. Overnight blood work indicated a number of issues. Penny's hemoglobin dropped below 7, several of her electrolytes were out of normal ranges, and…
Apr 4, 2024
R Pruim
Short stay?
PostHope
Things have gone pretty well today.
It has been busy with all the different teams stopping by (oncology, surgical oncology, nutrition, infectious disease, physical…
Apr 3, 2024
R Pruim
Likely infection
PostHope
I brought Penny to the ER this morning with a likely infection.
Apr 2, 2024
R Pruim
Status update
PostHope
We've been home about ten days now. I'm thinking this may be the longest stretch with out a trip to the ER in the last two months.
Mar 31, 2024
R Pruim
Back at home
PostHope
This afternoon we passed the final check — an ultrasound to check on clots in Penny’s legs — and were cleared for discharge. All electrolytes and hemoglobin seemed to be in…
Mar 20, 2024
R Pruim
Size seems to matter
PostHope
The new larger GJ tube was placed this morning and we have not changed the little 2x2 split gauze or needed a more elaborate dressing since. The G tube has once again been…
Mar 18, 2024
R Pruim
Upsizing
PostHope
Penny remains
in the hospital.
Consensus is that she can probably return home roughly 24-48 hours after we are sure there will be no more procedures during this stay.
Mar 17, 2024
R Pruim
Third time is not (yet) the charm
PostHope
Penny is still in the hospital, and it isn't clear at this point when discharge might be. There was talk earlier in the week that discharge could be as soon as today if…
Mar 14, 2024
R Pruim
No answers yet
PostHope
The scan didn't identify any sources of bleeding or any problems with the GJ-tube. That's good and bad. Some things that might have been challenging to deal with have been…
Mar 11, 2024
R Pruim
Spring Break | Goals | ER
PostHope
I'm writing this from the ER, and I'll get to that in a bit, after giving an update from the last week or so.
Mar 10, 2024
R Pruim
Home
PostHope
Penny was discharged this afternoon, and it's good to be home. The boring walks around the hospital floor were immediately replaced with some kitchen time to prepare a bit…
Feb 28, 2024
R Pruim
Couldn't have gone better
PostHope
Just got the report from the thrombectomy. After removing the clot, the vein was still completely collapsed, but they were able to inflate the stent and restore good blood…
Feb 23, 2024
R Pruim
Eight years of whack-a-mole
PostHope
Eight years ago today, February 23, 2016, we were in the emergency room at Butterworth for the first time.
Feb 23, 2024
R Pruim
Treatment plan
PostHope
Over the last 24 hours Penny's leg has continued to "inflate" and is now feeling quite heavy and can be painful if she isn't careful. In addition, she has some numbness in…
Feb 20, 2024
R Pruim
Nutcracker phenomenon
PostHope
We have the results of the CT scan. Two separate things were indicated.
Feb 19, 2024
R Pruim
Familiar faces
PostHope
You know you have spent too much time in the hospital when...
Feb 19, 2024
R Pruim
A test of time
PostHope
Two weeks ago at this time we were in the ER getting hydration. Here's a quick recap of the last couple weeks.
Feb 18, 2024
R Pruim
And we’re off…
PostHope
… to the ER.
Feb 18, 2024
R Pruim
First week (mostly) at home
PostHope
Here are some highlights and low lights from the first week at home.
Feb 4, 2024
R Pruim
Home!
PostHope
I passed my home nursing test, and Penny was discharged just before 6pm. I’ve assembled the IV pole and pump, and we’re up and running at home.
Jan 30, 2024
R Pruim
Updated plan
PostHope
Looks like discharge will be tomorrow or Tuesday.
Jan 28, 2024
R Pruim
Discharge delayed
PostHope
Penny had a terrible night last night. Pain, nausea, discomfort. We seem to have that all managed better now, but it doesn’t look like we will be leaving in time for a 1pm…
Jan 28, 2024
R Pruim
Good days and less good days
PostHope
Yesterday was a good day.
Jan 27, 2024
R Pruim
Where’s my knitting?
PostHope
Today is off to a good start.
Jan 27, 2024
R Pruim
Off to a good start
PostHope
Today is off to a good start. After about 2am, Penny was able to sleep much better. The nurses let her sleep in this morning and didn't bother her until after 8am. At her…
Jan 25, 2024
R Pruim
A is for Apple, P is for ...
PostHope
Today was a "hospital busy" day, especially in the morning and early afternoon when a steady stream of folks stopped by to check on Penny. It's hard to succinctly summarize…
Jan 25, 2024
R Pruim
Things are looking good + Bonus procedure
PostHope
A few minutes ago I spoke to the doctor. Penny is out of surgery and in the PACU (post anesthesia care unit). I'll probably see her within an hour or so.
Jan 23, 2024
R Pruim
Difficult questions
PostHope
In the past few days, people have been asking questions that for various reasons have been difficult to answer.
Jan 22, 2024
R Pruim
Hospice
PostHope
As we expected, Dr Lakhani let us know that Penny is not currently healthy enough to be admitted to a clinical trial. His recommendation is that we use the next few days to…
Jan 18, 2024
R Pruim
Knitting
PostHope
A while back I commented to Penny that one of my diagnositic tools for how she is feeling is knitting. Penny likes to knit and doesn't like to "do nothing". So when she…
Jan 16, 2024
R Pruim
Surgery scheduled
PostHope
Yesterday we received the call from scheduling. The surgery to place a G-tube (or possibly a GJ-tube, if they are able) is scheduled for two weeks from today -- January…
Jan 9, 2024
R Pruim
5/10 done with radiation
PostHope
Today was radiation treatment 5 of 10. So far the radiation treatments have been uneventful. The effects of radiation are cumulative and lagging, however. So any side…
Jan 4, 2024
R Pruim
Making progress
PostHope
Thursday night I made myself some stir fried vegetables and Penny commented how good it smelled, but she wasn’t ready to try actually eating anything herself.
Dec 30, 2023
R Pruim
Radiation. Day 1.
PostHope
Today was the first of ten scheduled radiation treatments.
Dec 28, 2023
R Pruim
Preposition week: Ups and Downs and friends
PostHope
Up:
Wednesday was by recent standards a good day. Penny took advantage to go out for breakfast with a friend in the morning, make Christmas treats with another friend in…
Dec 16, 2023
R Pruim
Spanish rice and shower chairs
PostHope
As expected, we received an electronic transcript of the reading of Penny's scan on Tuesday. The main take-aways are
Dec 9, 2023
R Pruim
Getting ready for a scan
PostHope
Penny's scan was moved up to tomorrow morning bright and early. (Arrival time 7 am.)
Dec 5, 2023
R Pruim
There's a drug for that
PostHope
It has now been a month since our last trip to the ER, but there have been some trends moving in the wrong direction the last couple weeks. In particular, Penny continues…
Nov 30, 2023
R Pruim
All the Ologies
PostHope
We are approaching 3 weeks without a trip to the hospital. It feels like it has been a long time since things were this "normal". But just because we aren't in the…
Nov 15, 2023
R Pruim
Home!
PostHope
And it’s more exciting than soup.
Oct 28, 2023
R Pruim
Soup!
PostHope
I keep waiting for some defining moment to post an update. The best I've come up with is that Penny had a bowl of soup this evening. That's the first "full liquid" food…
Oct 26, 2023
R Pruim
Back in the ER
PostHope
We are back in the ER with the now familiar symptoms of a bowel obstruction. The symptoms began yesterday evening. At her check-in today, she received some fluids, but…
Oct 24, 2023
R Pruim
Trial 3: Day 1
PostHope
Penny passed all the pre-flight checks and received her first payment infusion of the new drug today. We also discussed the scan Penny had last week. Not surprisingly, the…
Oct 19, 2023
R Pruim
Intake day
PostHope
We just finished our intake appointment. This involved numerous blood samples, an EKG, and some information exchange with one of the nurses. Yesterday Penny had an…
Oct 13, 2023
R Pruim
On to the next thing
PostHope
Penny was discharged at around 1pm, after getting a parting infusion of potassium and electrolytes this morning. We went directly from the hospital to the START clinic to…
Oct 10, 2023
R Pruim
Progress
PostHope
Yesterday was pretty unpleasant. But things are looking better today. Compared with other blockages, this one seemed to come on more suddenly and painfully, and the scan…
Oct 7, 2023
R Pruim
Change of plans
PostHope
Our meeting this afternoon has been postponed.
Oct 6, 2023
R Pruim
Looking up, looking forward
PostHope
Things have been steadily improving over the last couple weeks. Penny's weight has gone up each day for the last four days, and the amount of available energy each day has…
Oct 5, 2023
R Pruim
Ups and downs, and apple pie
PostHope
It’s been a bit since I last posted. That’s mainly because no day in the last couple weeks has had a particularly dramatic moment. It’s also difficult to see and describe a…
Sep 27, 2023
R Pruim
Exit interview
PostHope
Today was the official end of the second clinical trial. This involved an echocardiogram, an ekg, blood work, and a conversation with Dr. Lakhani. We added hydration for…
Sep 15, 2023
R Pruim
Battery: Low
PostHope
A week ago we were on our way to the ER because of a blood infection. Since coming home on Tuesday, things have been going pretty well. Pain and nausea have been mostly…
Sep 10, 2023
R Pruim
One for the road
PostHope
It looks like everything is set for Penny to come home this afternoon. The scan looks good -- no signs of anything getting worse, and a few things that look better. She's…
Sep 5, 2023
R Pruim
Report from Infectious Disease
PostHope
We just talked to a doctor from the infectious disease team. They have identified the bacterium in her blood (some long name I don't recall). Key facts about this type of…
Sep 4, 2023
R Pruim
Off to the ER
PostHope
Cultures came back positive and they want to start IV antibiotics ASAP. (Actually, I’m allowed to make her breakfast before we go, but then as soon as possible after that.)
Sep 3, 2023
R Pruim
So … tired
PostHope
Pain and nausea have both been better (though not entirely absent) this week. But fatigue has set in. Eating and drinking enough is also still a challenge, and Penny has…
Sep 2, 2023
R Pruim
Rx: Food
PostHope
Yesterday we met again with our oncologist and decided to discontinue the current trial. Based on Penny’s experience and the results from others in the trial, it seems…
Aug 25, 2023
R Pruim
Good news: It’s pneumonia
PostHope
I guess I should fill in the back story.
Aug 23, 2023
R Pruim
Good to be home, but...
PostHope
We got home about 4pm on Friday, and it has been good for Penny to be in her own space. But we are still dealing with pain and nausea that ebb and flow. Friday night was…
Aug 20, 2023
R Pruim
Heading home
PostHope
The last of several teams that needed to sign off before discharge just left. Everyone is on board with discharge today and switching to oral antibiotics, and pain and…
Aug 18, 2023
R Pruim
Tuesday updates
PostHope
A lot of things have been going on, so I'm going to organize these updates according to time scale.
Aug 15, 2023
R Pruim
In the ER
PostHope
After stopping the study drug on Wednesday, Thursday and Friday were quite a bit better than the 10 previous days. (Back to "queezy" rather than "nauseous".) But late…
Aug 12, 2023
R Pruim
Taking a Break
PostHope
The last 10-14 days have been pretty lousy, with nearly perpetual nausea (sometime more severe, sometimes less) and increased fatigue. This has also made eating difficult…
Aug 9, 2023
R Pruim
Stable-ish
PostHope
We haven't posted in awhile, in part because there haven't been many events of the sort that naturally trigger a post. And when people ask us how things are going on the…
Jul 16, 2023
R Pruim
On the clocks
PostHope
Today is another long clinic day, beginning and ending with a dose of the study drug and interspersed with blood draws and heart monitoring.
Jun 7, 2023
R Pruim
36 hours in
PostHope
We are now 36 hours and four doses into the new trial. There was some fatigue and mild nausea yesterday, but less of both today. All in all, things seem to be off to a good…
Jun 2, 2023
R Pruim
By the numbers
PostHope
Today is day 1 of the new clinical trial. At least we hope it will be (see 60, below).
May 31, 2023
R Pruim
Signing on the dotted line
PostHope
Yesterday Penny signed the consent form for the new study. Today we received the treatment schedule. The first treatment day will be May 31, and there will be a visit to…
May 13, 2023
R Pruim
Full speed ahead
PostHope
The treatment on Wednesday went much better than the previous two. Penny was pretty much back to normal the next day and has had a busy couple days of work, supported by a…
May 5, 2023
R Pruim
Last treatment?
PostHope
It is possible that today will be Penny's last immunotherapy treatment and that she will begin a new trial in a few weeks.
May 3, 2023
R Pruim
Add nausea
PostHope
One of the pleasant advantages of immunotherapy compared to chemo therapy has been the relative lack of nausea. Typically the anti-nausea meds that are given prior to the…
Apr 13, 2023
R Pruim
Cycle 5, Day 1
PostHope
The immunotherapy proceeds in 6-week cycles with treatments on days 1 and 22 of each cycle. Today is day 1 of cycle 5. (For those scoring at home, this means Penny has had…
Mar 22, 2023
R Pruim
Steady as she goes
PostHope
There hasn't been much to report the last few weeks, and that's usually a good thing. But since it has been a little while since we posted, here's the unexciting update...
Feb 16, 2023
R Pruim
Change in protocol
PostHope
Yesterday when the scheduling nurse called we learned about some changes to the protocol. Because things are going smoothly, the between-treatment check-ins will be…
Dec 31, 2022
R Pruim
On to Cycle 3
PostHope
The summary of the scan was "no measurable growth", so we are on to cycle 3. The hope is that we will continue with these 6-week cycles for a while. Each cycle will have…
Dec 28, 2022
R Pruim
Cycle 2 winding down
PostHope
Today was the last weekly check-in for cycle 2. Tomorrow we get to brave the snow storm to get to the hospital for a CT scan. Assuming there are no negative indications on…
Dec 23, 2022
R Pruim
Grace's December Treasure
PostHope
You may wonder what we do when we aren't posting here. Well, here's a partial answer:
Dec 1, 2022
R Pruim
Cycle 2 begins tomorrow -- we think
PostHope
The clinical trial runs in 42-day (6-week) cycles. Each cycle includes 2 treatments days, 3 weeks apart. At the end of each cycle there is a CT scan to see what the cancer…
Nov 16, 2022
R Pruim
Cycle 2 underway
PostHope
As expected our conversation with the Dr. this morning included the word "stable" many times. Cycle 2 has begun. The Benadryl nap will begin soon.
Nov 16, 2022
R Pruim
All systems go for round 2
PostHope
The pretreatment bloodwork came back “absolutely fantastic”, so treatment proceeded according to schedule today. As was the case three weeks ago, there was a…
Oct 28, 2022
R Pruim
Round 2 this Thursday
PostHope
The last couple weeks have been largely uneventful, with no negative indicators at the weekly check-ins.
Oct 23, 2022
R Pruim
Long, boring day
PostHope
The day ended up being even longer than we expected.
Oct 6, 2022
R Pruim
And we're off...
PostHope
We arrived at the START clinic a bit before 8am this morning. Currently Penny is in the "pre" phase -- a couple hours of fluids followed by 30 minutes of some…
Oct 5, 2022
R Pruim
New start date
PostHope
A scheduling glitch has led to a new start date for the clinical trial: Wednesday, October 5.
Sep 23, 2022
R Pruim
Home again
PostHope
Penny was discharged this afternoon.
Sep 14, 2022
R Pruim
Steady as she goes
PostHope
Just a quick update. Reintroduction of food is going well (no steps backwards), and it is possible that Penny could be discharged as soon as tomorrow or Thursday. She is…
Sep 13, 2022
R Pruim
In the ER
PostHope
Penny has been struggling with gut attacks since Thursday morning and this afternoon we were sent to the ER. Results of the CT scan indicate a “high grade obstruction”.
Gi…
Sep 11, 2022
R Pruim
Progress
PostHope
About 45 minutes ago we suddenly had an indication that the blockage may be resolving on its own. Penny is feeling much better.
Sep 11, 2022
R Pruim
Signed on the Dotted Line
PostHope
Today we had our rescheduled consent meeting with Dr Lakhani and Penny signed on the dotted line. This initiates the official "screening phase", which will involve some…
Sep 7, 2022
R Pruim
Postponed
PostHope
Our consent meeting needed to be rescheduled, so that didn’t happen today as originally planned. Likely it will be next week sometime.
Sep 2, 2022
R Pruim
We’ve Been Matched
PostHope
We found out today that Penny has been matched to an immunotherapy clinical trial. We have a “consent appointment” next Thursday at which we can ask questions and decide if…
Aug 26, 2022
R Pruim
Therapy Tutorial
PostHope
Monday’s meeting ended up giving us an overview of the kinds of studies that might be available and some information about how the process goes. Dr Lakhani is keen to start…
Aug 24, 2022
R Pruim
Monday we find out more
PostHope
Penny had some blood work done last Friday and a CT scan this Wednesday. Today the researchers at START Michigan will be reviewing her case to see what clinical trials might…
Aug 19, 2022
R Pruim
Exploring Options
PostHope
We met yesterday with our oncologist. It looks like we basically have two options: return to the chemo we have been using for the last 5 years (possibly adding in some…
Aug 13, 2022
R Pruim
1 Month
PostHope
Surgery was one month ago today. We celebrated with a trip to John Ball Park Zoo with Hannah and Andrew. Penny rode in a wheel chair, but enjoyed her first real outing.
Aug 11, 2022
R Pruim
Post Op Check-In
PostHope
Yesterday we met with the palliative care team (nausea and pain) and this morning we had the first post-op check-in at the surgeon's office. Everything is looking good, and…
Aug 5, 2022
R Pruim
Settling in
PostHope
The first few days at home have gone well.
Aug 1, 2022
R Pruim
Home!
PostHope
Penny was discharged a bit before noon today. She seemed to enjoy “real food” for lunch.
Jul 29, 2022
R Pruim
Nutrition
PostHope
It's been all about nutrition the last couple days.
Jul 28, 2022
R Pruim
Good to go home (almost)
PostHope
We just talked with Dr Chung, who is covering for Dr Assifi while she’s on vacation. We are good to go home anytime, but…
Jul 27, 2022
R Pruim
Sunshine on my shoulders…
PostHope
… makes me happy. (J Denver and pdp)
Jul 26, 2022
R Pruim
Progress
PostHope
The last 24 hours have been nausea-free, and Penny was able to eat at least a little at all three meals yesterday. So that’s good progress.
Jul 25, 2022
R Pruim
Twists and Turns, Ups and Downs
PostHope
The short description of the last two days is that the good parts of the day are getting a bit better and lasting a bit longer, but they are still interrupted by bouts of…
Jul 24, 2022
R Pruim
Are we there yet?
PostHope
If you mean
Are we still in the hospital?
then the answer is yes. If you mean
Are we about ready to go home?
then the answer is still no.
The last couple days have been a…
Jul 22, 2022
R Pruim
I think I’m hungry.
PostHope
After a Benadryl-assisted nap this afternoon, Penny woke up feeling much better. Her first words were “I think I’m hungry.”
Jul 21, 2022
R Pruim
It’s Complicated
PostHope
Yesterday was another day of nausea, so we’re taking some steps back.
Jul 20, 2022
R Pruim
Unpleasant, But Temporary
PostHope
Here's your medical term for the day:
Jul 19, 2022
R Pruim
Nausea
PostHope
Penny continues to make slow progress, and the pain is lessening pretty consistently day to day. But today has been a big struggle with nausea. So we’re making steps forward…
Jul 18, 2022
R Pruim
Inchstones
PostHope
Today was marked by checking off lots of little things that need to happen before heading home.
Jul 16, 2022
R Pruim
Slow Progress
PostHope
That’s the goal for the next couple days.
Jul 15, 2022
R Pruim
What a Difference a Day/Drug Makes
PostHope
Things are going much better this morning. No nausea. Normal blood pressure. Good pain control. The switch from dilaudid to fentanyl seems to have been a good one.
Jul 14, 2022
R Pruim
Nausea, Pain, Blood Pressure -- Pick Three
PostHope
Since last night we have been trying to triangulate controlling pain and nausea without having Penny's blood pressure drop. The good news is that we found a good dose of…
Jul 13, 2022
R Pruim
First Walk
PostHope
After a nausea- and pain-filled day, Penny managed to walk about 10 or 15 feet and then sit for awhile. That probably had more to do with her determination to do it than…
Jul 13, 2022
R Pruim
Today will be the worst day…
PostHope
But then things will start getting better.
Jul 12, 2022
R Pruim
Challenge Accepted
PostHope
Penny managed to sit in a chair for about an hour and a half. It seemed to go pretty well. Her official status has gone from “up with 2” to “up with 1”, meaning she needs…
Jul 12, 2022
R Pruim
Day 2 Goals: Deep Breaths, Pain Management, Getting Up
PostHope
We are now in the surgery recovery phase. We aren't exactly sure how this phase will go. To some extent, that is true with any surgery. But had the full surgery been…
Jul 12, 2022
R Pruim
Surgery is done
PostHope
I talked with Dr Assifi at around 11:45. The surgery was over. Much of what we hoped would happen could not be done because there was too much scar tissue and too much…
Jul 11, 2022
R Pruim
In surgery...
PostHope
Penny was wheeled away to surgery a little after 7:30 this morning. The surgery itself should be starting just about now. The two main objectives of Dr Assifi are (1)…
Jul 11, 2022
R Pruim
Surgically Optimized and Ready to Go
PostHope
Last week we had an appointment with the surgical optimization team. That’s a new thing for us this time around.
Jul 8, 2022
R Pruim
Surgery scheduled for July 11 (and how we got here)
PostHope
Here's a short version of how we got here (since some of you might not know):
Jun 27, 2022
R Pruim
START HERE - Welcome to Penny Pruim's care page
PostHope
This site is for family and friends who want updates on how things are going. We're new to this platform, but here's a quick overview of how PostHope works. (Let's assume…
Jun 27, 2022
R Pruim
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